….one can hope!! Yes, I am checking my email probably every 10 minutes to see if test results from the biopsy have been posted to MyChart and nothing yet! Patience is not one of my virtues!! :-)
I did play the keyboard yesterday for the first time in over 6 weeks!! That was so nice to sit down and play! And I opened up my knee hinge while I did which made it a little more comfortable than keeping my leg straight. I don’t feel any pain with the hinge open, sometimes I feel some little twinges in my knee, but that is really about the extent of it. I just played some newer music but will go over to the keyboard in a little while and play some classical. I am not that good of a player so much of my music is easier versions, which is probably some level of a cop out, but I figure why struggle with the full sheet music that might be 4 or more sharps or flats and have something that I can play immediately due to the easy level. You can quickly pick up the notes and know it is a classical piece but for me I can play it without struggling through the notes. Sometimes I tell myself I should try to more advanced version and then I think…why when these easy versions give me as much satisfaction without the frustration. And if it is too simple, I add some extra chords or notes.
Yesterday I exchanged a couple of texts with one of my nieces (Jane) on David’s side. I don’t have a lot of details, but do know that the PeT scan she had showed something that will be radiated. She is kind of in the private phase of this diagnosis. I understand that everyone handles these journeys in different ways. I tend to share…like pictures of my tumor…share more than probably some people would prefer. But that is the way I cope, I guess. Sometimes I share with someone and find out something that helps me. Like the nurse I met in the lab that had almost the same sarcoma I did and how she survived that full journey. Texting my niece I offered to call and talk, but I think she is preferring to be isolated at this point. She will start radiation next week, 5 days a week, every day M-F. Sure remember how that can go. Although mine was 3 weeks, as I said in previous blogs, you are in the machine for less than 5 minutes and wonder is this really doing anything. She will have her treatments at Southdale Hospital and they actually have reserved spaces for those receiving radiation so the patient doesn’t have to find a parking spot or pay to part in a ramp. What a fantastic idea!! You know when you are going through this journey, making things easier for the patient is just a little extra that can mean so much to the patient. At Mayo, we go parking passes for the number of days of radiation…just a little thing that makes a nice perk for the patient. I am thinking and praying for my niece and hope that at some point she will be open to talk directly, but again I know everyone is different on this cancer journey. My heart goes out to her!!
David is watching the World Science Festival on YouTube….zzzzzzzz…which is the one that he and his brother attended in New York. You would think once hearing this physics mambo-jumbo would be enough….but I guess not. Oh well, we all have our “hobbies” and need to appreciate what each of us find as our passions.
Stay positive and look around for something that makes you smile. It might be a peak of the sun, because it is really “mostly cloudy”, it might be the laugh of a grandchild, it may be seeing the buds on the trees, the peak of green grass or the numerous contrails in the sky….whatever makes you smile cherish it!
Dandy Ventures 